Showing posts with label fundraiser. Show all posts
Showing posts with label fundraiser. Show all posts

Monday, May 24, 2021

Oldesoul's Jail and Bail Events

 
By Bixyl Shuftan

Oldesoul Eldemar is a noted figure with the Relay. Though with the him taking part in the recent Fantasy Faire as a tiny member of the "Pawlice" arresting people for the various "jail and bail" events, it may have only been a matter of time before someone decided turnabout was fair play. And on the night of Saturday May 22, that happened.

At 6:31PM on the Relay for Life Volunteers group chat, Selene (Selene Jashan) called out, "Heyyyy Olde??????  We have a warrant out for your arrest!!!! Reason for Arrest: Many, many, pawsome acts of Relay." The warrant had been issued by her and Gem Sunkiller-Shadow, "Don't make me suit up and come for you, buddy!" Wateru Kohime announced, "I've got $L100 I can put towards Olde, for keeping him in longer that is." Olde couldn't believe it, "Wateru, I have been soo kind to you." Wateru and Gem just laughed in response, "I am evil tonight Olde." Wateru then conceeded, "Ok fine, I've got another $L100 to get him out too. So you break even." Selene laughed, "Uumm he needs a lot more than 100L."

Gem commented, "We will need to put you in the cell, and lock the door.  I'm sure you have friends who can front your bail. Selene laughed once more, "He needs 4k." Time went on, with the chatter turning to the Sunbeamer's Medieval Fun Fest at times, and Selene encouraged people to donate, "Who is going to come help bail OldeSoul out of jail, I know lots of you will come look just out of curiousity!" Gem added, "He looks so sad!"

It was then Selene posted a link to a picture in Relay Chat, that of Oldesoul in a tiny cage not tall enough for him to stand up in, with a policeman bot standing by, "Has his own personal guard." Cynthia Farshore of team Sunbeamers mused, "He looks right at home," then she went to the point, "I'm DJing, so stuck here. Where do I toss a remote?" Oldesoul answered, "Gem Sunkiller or Selene." Cynthia then sent the cash, with Olde saying, "Thank you Cynthia. I am free!" The Sunweaver answered, "Welcome, but warning if you show up at the Sunbeamer Medieval Fair you may be arrested there too!!"

Selene is with the River of Life Relay team. Gem is the Relay for Life's Season Lead for 2021.

As luck would have it, or perhaps Cynthia's suggestion, this was not the end of Oldesoul's troubles. At the second day of the Medieval Fun Festival the following day, the Sunbeamer's captain Rita Mariner announced in Relay chat, "Olde, you are to report to Caledon Downs immediately, You are under arrest.  For bribery of waffles to tinies and Patch Linden almost being eaten by a teddy bear." The charges were about the antics of the "Pawlice" at the Fantasy Faire, notably Patch Linden's jail and bail inside the belly of a giant teddy. Nance Clowes asked, "Whats it gunna take to bail out ... Olde?" Rita answered, "After Olde spend time in my gibbet, we can talk 'bail/ Bribe.'" Olde's response was, "Ms. Rita - I am meeting with my build team, may I make a rain date?" Cynthia commented, "Evasion from the law, another charge!" Rita's response was, "Yes, now life in my gibbet." Olde countered, "Have you spent time with my builders?" Rita answered, "No, but I can lock them up with you." "You know them, silly one! I will be down in a bit." 

Eventually, Olde announced he was ready, to which Alison Flow went, "Lock him up!" Gem Sunkiller grinned wickedly, "Who are we locking up now?" At Caledon Downs, Olde showed up and Rita showed him the cage, "Ok criminal, in you go." Cynthia was there, "HAAAA nab him!" Olde went in, "Welcome friends, I think." "So until someone feels pity on you and pays the crown to bail you out." Then Rita got some Lindens from someone, but not to bail out, "Oh my you really upset someone. They paid extra to extend your stay." It was then Gem Sunkiller showed up. "Hi Gem," Rita greeted her, "It has to be a HIGH BAIL! Some one paid extra to keep him locked up longer." Olde tried to look sympathetic, "We are friends - and I just spent hours with your friends." "Need at least 3000L to bail him out. Is he worth it? ... They paid 2500L to lock you up, 3000L to bail you out."

In Relay chat, Nance mused, "I heard Bixyl has been saving up for seven years in case he needed to be bailed out." Gem mused at the sight of Olde, "Awwwww, hanging in a birdie cage." Cynthia added, "Well well now lookey what we have here. We got Olde in the pookey, Looks like he is in bad need of help right now . Caledon Downs (49,163,23)." Olde called out to a friend, "Trader - have a Linden?"

Back at Downs, Olde stated, "Someone decided you have been soo kind to ACTS." After a moment, Rita announced, "Ok, bail is paid, your debt to the crown is settled, your free to leave." Olde stated as he got out, "They paid the rest. Off to work." "You are now free to enjoy the faire." "Thank you ladies and gents." "Free to go," one other spoke, "at least until we hear about any other waffle incidents."

So Olde was part of two jail and bail events that brought in a total of 7000 Lindens, the 4000L going to Team Sunbeamers part of their two day total of 73,675 Lindens (117,675L going to the 'beamers and Roos With A Dream teams combined). How long will the suffering Oldesoul Eldemar avoid any more "cagey" feelings? Time will tell.

First picture from Selene (Selene Jashan)

Bixyl Shuftan
 

Wednesday, February 24, 2021

Announcement: Rare Disease Day in Second Life

 

Rare Disease Day is a yearly awareness campaign in real life that is held on the last day of February each year.

Now, due to the COVID 19 pandemic, I will recreate this event in Second Life.

On Sunday, February 28th,  2021  from midnight SLT until Monday, March 1st, 2021 midnight SLT, we will have live artists and DJs playing live on our venue

http://maps.secondlife.com/secondlife/Tainted%20Island/156/206/2004


What is Rare Disease Day?  https://www.rarediseaseday.org/article/what-is-rare-disease-day

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.

The campaign targets primarily the general public and also seeks to raise awareness amongst policymakers, public authorities, industry representatives, researchers, health professionals, and anyone who has a genuine interest in rare diseases.

Why is Rare Disease Day held each year? https://www.rarediseaseday.org/article/what-is-rare-disease-day

Building awareness of rare diseases is so important because 1 in 20 people will live with a rare disease at some point in their life. Despite this, there is no cure for the majority of rare diseases and many go undiagnosed. Rare Disease Day improves knowledge amongst the general public of rare diseases while encouraging researchers and decision-makers to address the needs of those living with rare diseases.

Key figures about rare diseases:  https://www.rarediseaseday.org/article/what-is-a-rare-disease
 

There are over 300 million people living with one or more of over 6,000 identified rare diseases around the world1, each supported by family, friends, and a team of carers that make up the rare disease community.

Each rare disease may only affect a handful of people, scattered around the world, but taken together the number of people directly affected is equivalent to the population of the world’s third-largest country.

Rare diseases currently affect 3.5% - 5.9% of the worldwide population.

72% of rare diseases are genetic whilst others are the result of infections (bacterial or viral), allergies, and environmental causes, or are degenerative and proliferative.

70% of those genetic rare diseases start in childhood.

A disease defined as rare in Europe when it affects fewer than 1 in 2,000 people.
Characteristics of rare diseases

Over 6000 rare diseases are characterized by a broad diversity of disorders and symptoms that vary not only from disease to disease but also from patient to patient suffering from the same disease.

Relatively common symptoms can hide underlying rare diseases leading to misdiagnosis and delaying treatment. Quintessentially disabling, the patient's quality of life is affected by the lack or loss of autonomy due to the chronic, progressive, degenerative, and frequently life-threatening aspects of the disease.

The fact that there are often no existing effective cures adds to the high level of pain and suffering endured by patients and their families.
Common challenges

The lack of scientific knowledge and quality information on the disease often results in a delay in diagnosis. Also, the need for appropriate quality health care engenders inequalities and difficulties in access to treatment and care. This often results in heavy social and financial burdens on patients.

As mentioned, due to the broad diversity of disorders and relatively common symptoms which can hide underlying rare diseases, initial misdiagnosis is common. In addition, symptoms differ not only from disease to disease but also from patient to patient suffering from the same disease.

Due to the rarity and diversity of rare diseases, research needs to be international to ensure that experts, researchers, and clinicians are connected, that clinical trials are multinational, and that patients can benefit from the pooling of resources across borders. Initiatives such as the European Reference Networks (networks of centers of expertise and healthcare providers that facilitate cross-border research and healthcare), the International Rare Disease Research Consortium, and the EU Framework Programme for Research and Innovation Horizon 2020 support international, connected research.
How can Rare Disease Day make a difference?

Rare Disease Day raises awareness for the 300 million people living with the rare disease around the world and their families and carers.

The long-term cause of the Rare Disease Day campaign is to achieve equitable access to diagnosis, treatment, health and social care, and social opportunity for people affected by a rare disease.

Important progress continues to be made with joint international advocacy efforts for universal health coverage (UHC), part of the United Nations Sustainable Development Goals (SGDs) to advocate for equitable health systems that meet the needs of people affected by rare diseases in order to leave no one behind.

Rare Disease Day is the opportunity to advocate for rare diseases as a human rights priority at local, national, and international levels as we work towards a more inclusive society.

Rare Disease Day is a great example of how progress continues to be made, with events being held worldwide each year. Beginning in 2008, when events took place in just 18 countries, Rare Disease Day has taken place every year since with events being held in over 100 countries in 2019.

We hope to see you at our event for Rare Disease Day in Second Life on Sunday, February 28th,  2021!

Wesley Regenbogen

Monday, October 23, 2017

Barbie Alchemi on Creations For Parkinson's


By Wesley Regenbogen

About Barbie Alchemi

Barbie Alchemi is the founder of Creations Park. She created this place with the help of her family, and holds events there for Team Fox, for the Michael. J. Fox Foundation. Her real life father died with Parkinson’s and one year later her mother was diagnosed with the disease as well. Her brother introduced her to Second Life about eight years ago and her mother spend more and more time in Second Life and it improved her real life by doing so. They were all so amazed that Second Life had a so positive influence on her real life management of the disease that they felt that they needed to do something positive with their time on Second Life. Her mother is 90 years old in real life now and she is still active in Second Life today!

Interview

I met Barbie Alchemi in Creations Park. First I asked how she got into Second Life and how she created Creations Park. The answer to that question is in the introduction above. Next I asked how the raise money fo the foundation in Second Life. They started to raise money and awareness for Parkinson’s disease. Over the last eight years they raised 10 Million Lindens ( over 40,000 USD ). In addition to raising donations, they have held a weekly support group, which is open to anyone with Parkinson’s.

This year they created a Gotham Halloween Event, which is held the whole month of October 2017. They have 75 shops with fashions and home and garden decorations. Barbie told me, "You can explore our Haunted House, Cemetery and Asylum with wonderful details and surprises at every turn. We have a fun Amusement Park with Halloween themed rides and also a Lil' Pumpkin Park for families to bring their children"

They will have a fabulous line-up of DJs and live singers. They will have three performances of the "Misfit Dance and Performance Art Troupe" at 5pm Oct 21, 28 and 29. There is a raffle and auction. And we have a terrific HUNT with original gifts in every shop for only 10L each!

Then I asked how the donations are done for the foundation. She replied to me We believe it is very important for people in SL to know how their donations are handled. Our family covers all SL expenses. Team Fox has arranged to have LL to wire all donations and money raised directly to the Team Fox Headquarters. Visitors can donate at the cute Ghost Kiosks we have around the sim. And 50% - 100% of all shop sales are scripted to go to the official Team Fox Account.
"We are extremely proud to tell you that The Michael J Fox Foundation has the top rating from Charity Navigators. Team Fox gives 100% to The MJF Foundation. They have perhaps the lowest overhead of any major charity, at only 11% !!! Which means that 89% of Your donations are going into the most promising research. We are getting closer every day to a cure. And when that cure is found it will help lead to a cure for all other neurological diseases. “
Then I asked how she manages to create the sim and the decorations. She wanted to thank a few people for this, "This event could only be possible with our talented team who has worked so well together." She listed them as.
Rose Mikaelson (djroseathena)- Events for Parkinson's Coordinator
Nola Hellershanks- Events for Parkinson's Co-Coordinator
allιє pαrĸєr (swazeyrivers)- Event Music Coordinator
Miyushu Babii- Assistant Decorator
Ayesha - Solace Beach Estates (ayesha.lytton)- Amusement Park
Linden Labs- Region Sponsor
Then I asked her how she sees the future of the sim and the events she holds for the foundation. She told me, “ Gotham Island will be here for the month of October. Creations Park has been our permanent region for 6 years now. We will continue with the fabulous Shopping, Hunts, Music and on-going weekly fun activities which we all enjoy. Our Events for Parkinson's Team has some fun plans for another big event this Spring and more in the future!"
I thanked her for the interview and wished her luck with the sim and her events for the Michael J. Fox Foundation.
You can visit the place at this SLURL :
Check out this video :


Wesley Regenbogen